Thursday, 18 April 2024

My Cancer Journey

 18 April 2024



My Cancer Journey



INITIAL CONSULTATION

Two years ago at the end of May I decided to bite the bullet and visit my doctor.  To be honest I had been putting it off for so long trying to convince myself that I was healthy and had no real concerns.  But there was a little niggle at the back of my mind.  My husband had noticed that my breathing had become laboured at the slightest exertion.  I was slightly miffed at his comment – my weight gain was causing me anxiety.  I had tried everything possible to lose the weight but the more I tried the more I seemed to gain!  Another thing that I had concerns about was I had started to become self-conscious of my neck.  To me it looked swollen and I thought was possibly due to weight gain.  I didn’t know at the time but was told later that thyroid problems were prevalent in the female side of my family.  So with this combination of issues, I decided to make an appointment with my doctor.  I had hoped that a blood test would help confirm my own self-diagnosis of everything being connected to weight gain.

You have to remember that doctors at this stage were not making routine appointments – things had changed with COVID so it tended to be telephone consultations only.  However, my doctor decided that I needed a face-to-face consultation.  After considerable time examining my neck and going through some routine questions, my doctor agreed to run some blood tests but included an x-ray of the neck.  Things moved fairly quickly after those initial appointments – blood tests confirmed stress levels were high but nothing about my thyroid gland showed up.  The x-ray was the crucial turning point for me.  Something had shown up which led to a chest scan.  At the same time I was informed that 2 referrals were made by my doctor – one for ear, nose and throat and the other for respiratory.  When my doctor gave me the blood test and x-ray results, I was informed that whilst the 2 referrals had been made, more than likely the ear, nose and throat appointment would probably result in a discharge as it was unlikely anything would result from an examination.  He was correct and I moved on to the Respiratory Team for the results of my chest scan.

DIAGNOSIS AND TREATMENT




I was informed that I had an undefined lump visible in my lung which needed further investigation.  A CT scan then a bronchoscopy and an endoscopy followed as well as a brain scan.  At the end of July 2022 it was confirmed that I had lung cancer.  My tumour was the size of a golf ball and because of its position in my lung I needed to have an operation in which part of my lung would be removed along with the tumour.   On 2 November 2022 a third of my lung and the tumour was removed.  This was a major operation with my chest being opened for the removal.  Chest drains were inserted but I was on my feet and walking around the ward by the following day. COVID was present on the ward so visitation was not allowed.  Thankfully this restriction was lifted 5 days after surgery so my husband and daughter could visit.  Within a week I had returned home to recover.  An infection a week later resulted in another visit to my local hospital but thankfully a scan showed no clotting.  Gradually I started my rehabilitation at home.  My one mistake at this time was not moving more as that would have helped recovery particularly in my muscles but tiredness was my biggest problem in these early days.

Within 3 months of surgery I returned to work although I took some time off each week to recover fully. The type and nature of my lung cancer meant I did not need any further treatment such as chemotherapy or radiotherapy and I was given the all clear in April 2023.  This means that I am cancer free but will continue to receive follow up scans over the next 5 years.  I am not taking any medication at this moment in time.  Further blood tests 2 months after surgery revealed a low iron count which was attributed to blood loss during and after surgery as well as not moving enough during recovery.

REACTION


Initially my reaction to my cancer diagnosis was one of shock.  My local hospital referred me to another specialised hospital for surgery and treatment specifically for lung cancer.  It was not until I attended my first consultation with the specialist at this second hospital that I was told about my cancer, surgery, recovery and future treatment.  I received complete reassurance at this appointment that the surgery would be successful in removing the tumour and that no further treatment would be necessary.  To be honest up to this point I really did not fully understand everything about my cancer or the future outcome.  However. I was resting on my faith in Jesus Christ, trusting him entirely for whatever my cancer would mean in the future.  It was this assurance of faith that I believe helped others to realise that I had accepted my diagnosis and surgery as well as outcome.

I have to be honest that up to this point in my life I always considered cancer as terminal.  I had personally lost both my grandmother, mother and an aunt to cancer as well as other family members on my husband’s side.  As I was going through my initial appointments and waiting on surgery, my husband and I both lost cousins to cancer. I would say I felt quite numb during the period of waiting for surgery.  My husband and I did tell immediate family members but at my insistence I asked that we didn’t tell or let it be known too widely.  I do not regret doing that as those who did hear had mixed reactions, some of which upset me personally.  Cancer is very personal and acceptance of it takes quite a length of time without the added pressure of other people’s opinions.

FAITH

As mentioned already my faith in Christ is extremely important to me personally. As a child I had made a decision to put my faith and truth in Christ as my own and personal Saviour through a holiday bible club.  I realised that Jesus Christ loved me so much and had died for my sins on Calvary’s cross.  I had assurance of sins forgiven and a promise of eternal life.  Throughout my years since I made that decision, I have proved time and again God’s undeserving grace and help in my life. 

Initial thoughts after my initial diagnosis turned to the length of time I would be waiting for surgery and future recovery.  Whilst I can reflect now and am very grateful to how quickly things progressed, at the time the days were long.  I had decided to continue working as long as I possibly could but when I took COVID and missed my first surgery date, I was advised to no longer work but focus on being well enough for the next surgery date.  Time was long at this point but I concentrated on hearing and waiting on God for his leading and direction from his word.  It was a real answer to prayer to have surgery within a month of the initial first date.  I was assured of many people praying for me in the weeks before and after surgery. 

How do you prepare for a future that is uncertain?  Looking back now I have to say I had such a sense of calmness and peace as I knew God was in control.  He knew the end from the beginning.  27 years previously to the exact month I had lost my mother to bowel cancer.  I nursed her during those last 6 months of her life and had watched her enduring surgery and chemotherapy.  My mother’s faith in Jesus Christ was a testament to the rest of her life and that memory was something which I always found comfort in.

Prior to my diagnosis I had committed myself to reading more of God’s word and repeatedly I found God speaking to me through what I journaled.  I strongly believe that God was preparing my heart for the trial ahead.


 

LESSONS LEARNED

I do not know or understand why I was diagnosed with lung cancer or why I have survived.  There are some questions in life we will never have all the answers to but one day God will reveal it, either in this life or the next. 

Not all cancer results in death as I can testify.  I do believe however that certain things do happen in life that are ultimately for God’s purpose and good, not ours.  I live today to know more of God and his word.  Yes I do have a different perspective on life and in particular how to deal with trials that God sends.  Many ask why I did not pray and seek a miracle from God.  I want to say that I believe God does heal and he uses different methods – for me that healing came in the form of the surgeon who performed my surgery.  God uses the hands of specialists for his ultimate purpose and good.  I love my Lord and Saviour and every day thank him for my healing and recovery as well as the cancer.

How I reacted to my diagnosis is different to everyone else but it is not something you can presume or determine beforehand.  One thing I have learned however is – it is good to cry and bring all your concerns and worries to God. He is the best listener.  It is easy to keep up a good appearance to people but when you are on your own, then the reality does hit home!  I have also learned that it is actually harder for loved ones to deal with a cancer diagnosis and there is nothing you can really do to help them as they navigate the future.  It was important for me to realise that people have different responses and some may not look as though they have accepted the reality of such a diagnosis.  However I knew that it was individual coping mechanisms that I was watching and that was alright.

I have not talked openly to many about my cancer.  In fact this is the first time I really have put my thoughts to paper.  I really would love to help others who have just discovered they have lung cancer but not for the purposes of sounding like I am an expert because that is far from the truth.  Every cancer is different and reactions likewise.  Above all else I want to bring glory to God.  I was so aware of his presence throughout the whole experience and I want to share that with others.  I do not take life for granted – it is God who has given it to me and I live to honour him.

 


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